The Full Story
I am a mum of three, a dog mum of two, I have been married for 8 years (although it feels longer ha!). I am northern so I do refer to myself as mam and not mum, although autocorrect is always telling me I've spelt it wrong.
Our youngest daughter, Delilah was born in 2012 with additional needs. We don’t have a diagnosis for her syndrome as of yet but she is wonderful regardless of her added extras. Delilah is physically disabled, partially sighted, has a form of nystagmus, has a form of ichthyosis among other things and a ASD diagnosis. That isn't everything but to be honest I am not even sure anymore…
From our first initial appointment up until 2019 I found myself feeling very lost, I didn’t still quite understand the SEND world even though I had spent a long time in it. This had been very difficult for me, but not so much Delilah... simply because she knows no different. I speak about my personal experiences a lot on this website as Delilah is a very content little girl, she takes everything in her stride and although difficult she asks for nothing, she is happy in her unicorn glittery world.
It has taken me such a long time to pick myself back up, to power on and start knowing how to be me again. To differentiate between mam, carer and me, tracey. Turns out, I will never be ‘me’ again. The person I am now, the old me genuinely wouldn’t believe it. I am crafter instead of a drinker, I am a good source of medical knowledge, can be anxiety ridden and superwoman all in one day.
The SEND world is huge and there is a lot to get your head round so let us help where we can.
"Alone we can do so little, Together we can do so much"
I’ll be here, with my friends, to support you along the way.
Welcome to the wonderfully special club, that no one asks to be in.
So, I figured I would tell the world this… (well, whoever chooses to read it, hi btw)… to especially tell other parents new to the SEND world that although you are lost right now, you will find your own way. If you are struggling, there is help. Parent knowledge is the best source, pick your battles, find your tribe and you can do this. It may not seem it, but you will wake up one day and you will have adapted to this world. You will take pleasure in the little things and enjoy them more than the bigger things.